Owen’s daily battle with Leukemia.
This journal captures Owen's brave battle against Leukemia.
Here, we will document every hurdle he triumphs over, so that when he's in remission and we reflect, we marvel at the extraordinary journey he's undertaken.
B-cell Acute Lymphoblastic Leukemia
B-ALL is a cancer of the blood where immature B lymphocytes proliferate, crowding out healthy cells, leading to anemia, infections, and bleeding.Over the past few decades, advances in treatment have significantly increased the survival rate for children with B-ALL, making it one of the most treatable forms of leukemia.
Swollen Lymph Nodes
Just as Thanksgiving 2023 rolled around, Owen’s right neck began bulging. Initially, the assumption was due to several ear-infections he’d recovered from.
Leukemia can cause lymph nodes to enlarge due to the accumulation of cancerous cells in these nodes, leading to swelling and noticeable lumps.
Severe Leg / Bone Pain
Shortly after reigning in 2024, Owen was admitted to the hospital when he could not apply pressure to his right leg. Despite X-ray, no fracture was found.
The bone marrow, overcrowded with leukemia cells, can lead to intense pain or discomfort in the bones and joints, manifesting as unexplained leg pain.
Relentless Ear Infections
In a span of several months at the end of 2023, Owen was seen and diagnosed with at least 3 ear infections despite heavy antibiotics.
A weakened immune system due to leukemia can result in an increased vulnerability to infections, including repeated ear infections despite treatment.
About Owen
And how it all started...
On May 2nd, 2020, at 2:02 pm, we were blessed with a son whose blue eyes sparkled with curiosity from the very beginning. Owen's sandy blonde hair and his first words, "Hi!" followed by an adorable "Lasagna," a nod to his favorite show, "Go, Dog, Go!" on Netflix, brought so much joy into our home. His curiosity was apparent early on; unlike other children fascinated by aquarium fishes, Owen was more intrigued by how light switches worked, the doors' mechanics, and the technology's wonders.
Owen's personality blossomed as he grew. He was patient, persistent, and loving. If he's promised something, he won't let it go unnoticed. His stubbornness, matched only by his focus, makes him determined to achieve whatever he sets his mind to. He loves building and has always been keen to work with his hands. His affection for us, his parents, and his grandparents knows no bounds—he calls us "his friends" and cherishes our cuddles.
But then, one day, a lump formed...
A lump emerged...
The journey to discovering Owen's B-Cell Acute Lymphoblastic Leukemia felt like a rollercoaster that refused to end. It started innocently with ear infections followed by rounds of antibiotics that became our routine.
But then, a lump on Owen's neck emerged. Small at first — it grew ominously. Pediatricians and ER visits chalked it up to the ear infections, advising patience.
So we waited.
Unexpected collapse...
Owen's snoring, reminiscent of his Owen’s Dad's pre-tonsillectomy days, led us to an ENT — who expressed hesitation over swollen lymph nodes and scheduled a follow up six-weeks later.
So we waited some more.
Two weeks later, Owen's unexpected collapse and scream of pain turned our worry into panic. A suspected toddler's fracture (a common but often minor bone crack in young children) ended up being a red herring. The real issue lay unaddressed.
So we waited even more.
Worst fears confirmed...
Finally, the local ENT's observation of multiplying swollen lymph nodes hastened our referral to a specialist at OSHU Doernbecher Children's Hospital. Tests followed, a blur of activity masking our growing dread.
The call came after Owen had just scaled a play structure, his pride in his achievement lighting up his face. "No Daddy, but I feel better now," he protested when we said we had to return to the hospital. His frightened words cut deep.
Admission to the hospital confirmed our worst fears. Owen's condition rapidly deteriorated, his body betraying the severity of his illness. We were thrust onto a path we never chose, learning painfully that this is just the beginning of a long, thankfully recoverable battle.
Our story isn't unique, but it's ours. It's a reminder of the fragility of health, the strength of hope, and the relentless courage of a child facing unimaginable challenges.
Owen's current treatment stage: Interim Maintenance
While there's a standard treatment plan for B-Cell Acute Lymphoblastic Leukemia, Owen's individual response will determine the type of drugs, the intensity, and the length.
Induction Stage
Combination of chemotherapy drugs, administered intravenously, orally, and directly into the cerebrospinal fluid.
Consolidation Stage
To get rid of any leukaemia cells that might still be hiding and to stop them from coming back.
Interim Maintenance Stage
Has the goal of maintaining remission and allowing bone marrow to recover from effects of therapy.
Intensification Stage
A phase of increased treatment intensity to ensure the eradication of discovered residual Leukemia.
Maintenance Stage
Prevent relapse by killing any leukemia cells that might have survived the first two or three phases.
The Journey so far...
Follow along Owen's treatment journey, written from the perspective of his loving parents.
Latest entries:
Week 12: Owen Turns 4, Thanks to Doctors and Prayers!
Catch up on Owen's Journey...
Day 1: Fears Became Reality
Day 2: Transfusion
Day 3: Diagnosis & Dropped Vitals
Day 4: Steroids
Day 5: Journaling the Journey
Day 6: Happy Juice
Day 7: It’s been a week
Day 8: The Poop Victory
Day 9: Visit from Papa & Nana
Day 10: Explosive
Day 11: Thank you!
Day 12: Home away from home
Day 13: Rough Day
Day 14: Better Day
Day 15: Musical Hotels, Part 1
Day 16: Musical Hotels, Part 2
Day 17: “I’m sorry I’m sick…”
Day 18: Lazy Sunday on Friday
Day 19: Spark of Returned Independence
Day 20: Tired, Stressed, Thankful
Day 21: Thank you, Ground Control!
Day 22: Christmas in March
Day 23: Anticipation of Home
Day 24: Home, at last!
Day 25: Blessings
Day 26: Two Extremes
Day 27: Maelstrom of Emotions
Day 29: He's Alive
Day 30: Patience, Resilience, Exhaustion...
Day 31: It's been a month...
Day 32: Accidental Nap
Day 33: Unsolicited Hugs & Kisses
Day 35: A week free from medications
Day 36: No detectable Leukemia cells
Day 37: Play, Love, Community
Day 38: Eve of Port Placement
Day 39: Hope for Successful Port Surgery
Day 40: Young Cub Nursing Wounds
Day 41: Sunday Normalcy
Day 42: Another Operation, New Medication
Day 53: Incompetence at Riverbend
Week 8: It's been 60 Days!
Week 10: New Phase of Treatment!
Week 12: Owen Turns 4, Thanks to Doctors and Prayers!
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