Owen's Current Treatment Stage: Interim Maintenance
Owen's Leukemia Journal

Owen’s daily battle with Leukemia.

This journal captures Owen's brave battle against Leukemia.

Here, we will document every hurdle he triumphs over, so that when he's in remission and we reflect, we marvel at the extraordinary journey he's undertaken.

Latest Journal Entry:
Owen in the hospital being treated for Leukemia
Owen getting a blood transfusion being treated for Leukemia
Owen receiving oral steroids being treated for Leukemia
Melissa holding Owen in the hospital being treated for Leukemia
Owen getting an ultra sound to look at his lymph nodes
Owen in the hospital being treated for Leukemia
Owen all smiles in the hospital being treated for Leukemia
Devin, Melissa, and Owen
Owen on the Max Portland Transit Train
Owen all smiles after getting a new t-shirt, pre Leukemia diagnosis
Owen hanging out with Dad, pre Leukemia diagnosis
Owen's daycare photo, pre Leukemia diagnosis
Owen's Diagnosis.

B-cell Acute Lymphoblastic Leukemia

B-ALL is a cancer of the blood where immature B lymphocytes proliferate, crowding out healthy cells, leading to anemia, infections, and bleeding.Over the past few decades, advances in treatment have significantly increased the survival rate for children with B-ALL, making it one of the most treatable forms of leukemia.

Owen getting a blood transfusion in the hospital.
Owen smiling at Dad with a swollen lymph node, pre Leukemia diagnosis

Swollen Lymph Nodes

Just as Thanksgiving 2023 rolled around, Owen’s right neck began bulging. Initially, the assumption was due to several ear-infections he’d recovered from.

Leukemia can cause lymph nodes to enlarge due to the accumulation of cancerous cells in these nodes, leading to swelling and noticeable lumps.

Owen in the hospital due to pain in his leg, pre Leukemia diagnosis

Severe Leg / Bone Pain

Shortly after reigning in 2024, Owen was admitted to the hospital when he could not apply pressure to his right leg. Despite X-ray, no fracture was found.

The bone marrow, overcrowded with leukemia cells, can lead to intense pain or discomfort in the bones and joints, manifesting as unexplained leg pain.

Owen getting an ultra sound to look at his lymph nodes

Relentless Ear Infections

In a span of several months at the end of 2023, Owen was seen and diagnosed with at least 3 ear infections despite heavy antibiotics.

A weakened immune system due to leukemia can result in an increased vulnerability to infections, including repeated ear infections despite treatment.

About Owen

And how it all started...

On May 2nd, 2020, at 2:02 pm, we were blessed with a son whose blue eyes sparkled with curiosity from the very beginning. Owen's sandy blonde hair and his first words, "Hi!" followed by an adorable "Lasagna," a nod to his favorite show, "Go, Dog, Go!" on Netflix, brought so much joy into our home. His curiosity was apparent early on; unlike other children fascinated by aquarium fishes, Owen was more intrigued by how light switches worked, the doors' mechanics, and the technology's wonders.

Owen's personality blossomed as he grew. He was patient, persistent, and loving. If he's promised something, he won't let it go unnoticed. His stubbornness, matched only by his focus, makes him determined to achieve whatever he sets his mind to. He loves building and has always been keen to work with his hands. His affection for us, his parents, and his grandparents knows no bounds—he calls us "his friends" and cherishes our cuddles.

But then, one day, a lump formed...

Owen when he turned 1 years old, pre Leukemia diagnosis

A lump emerged...

The journey to discovering Owen's B-Cell Acute Lymphoblastic Leukemia felt like a rollercoaster that refused to end. It started innocently with ear infections followed by rounds of antibiotics that became our routine.

But then, a lump on Owen's neck emerged. Small at first — it grew ominously. Pediatricians and ER visits chalked it up to the ear infections, advising patience.

So we waited.

Unexpected collapse...

Owen's snoring, reminiscent of his Owen’s Dad's pre-tonsillectomy days, led us to an ENT — who expressed hesitation over swollen lymph nodes and scheduled a follow up six-weeks later.

So we waited some more.

Two weeks later, Owen's unexpected collapse and scream of pain turned our worry into panic. A suspected toddler's fracture (a common but often minor bone crack in young children) ended up being a red herring. The real issue lay unaddressed.

So we waited even more.

Worst fears confirmed...

Finally, the local ENT's observation of multiplying swollen lymph nodes hastened our referral to a specialist at OSHU Doernbecher Children's Hospital. Tests followed, a blur of activity masking our growing dread.

The call came after Owen had just scaled a play structure, his pride in his achievement lighting up his face. "No Daddy, but I feel better now," he protested when we said we had to return to the hospital. His frightened words cut deep.

Admission to the hospital confirmed our worst fears. Owen's condition rapidly deteriorated, his body betraying the severity of his illness. We were thrust onto a path we never chose, learning painfully that this is just the beginning of a long, thankfully recoverable battle.

Our story isn't unique, but it's ours. It's a reminder of the fragility of health, the strength of hope, and the relentless courage of a child facing unimaginable challenges.

Stage.

Owen's current treatment stage: Interim Maintenance

While there's a standard treatment plan for B-Cell Acute Lymphoblastic Leukemia, Owen's individual response will determine the type of drugs, the intensity, and the length.

Owen's Journal.

The Journey so far...

Follow along Owen's treatment journey, written from the perspective of his loving parents.

Latest entries:

Catch up on Owen's Journey...

Intense day of hope, tests, and a leukemia diagnosis for Owen in Portland.
Steroid Pre Stage

Day 1: Fears Became Reality

Intense day of hope, tests, and a leukemia diagnosis for Owen in Portland.
Intense day of hope, tests, and a leukemia diagnosis for Owen in Portland.
Owen's Parents
February 13, 2024
3 mins
Owen's treatment advances with blood transfusion; surgeries set for tomorrow.
Steroid Pre Stage

Day 2: Transfusion

Owen's treatment advances with blood transfusion; surgeries set for tomorrow.
Owen's treatment advances with blood transfusion; surgeries set for tomorrow.
Owen's Parents
February 14, 2024
2 mins
Owen officially diagnosed with B-Cell ALL; faces tough treatment journey but with hope.
Steroid Pre Stage

Day 3: Diagnosis & Dropped Vitals

Owen officially diagnosed with B-Cell ALL; faces tough treatment journey but with hope.
Owen officially diagnosed with B-Cell ALL; faces tough treatment journey but with hope.
Owen's Parents
February 15, 2024
2 mins
Owen's leukemia treatment shows progress; breathing improves, successful surgery, swelling reduces.
Steroid Pre Stage

Day 4: Steroids

Owen's leukemia treatment shows progress; breathing improves, successful surgery, swelling reduces.
Owen's leukemia treatment shows progress; breathing improves, successful surgery, swelling reduces.
Owen's Parents
February 16, 2024
2 mins
Family navigates Owen's care, finding strength in support, switching care roles, and community solidarity.
Induction

Day 5: Journaling the Journey

Family navigates Owen's care, finding strength in support, switching care roles, and community solidarity.
Family navigates Owen's care, finding strength in support, switching care roles, and community solidarity.
Owen's Parents
February 17, 2024
2 mins
Owen, battling illness, finds joy in grandpa's video, family visits, and "happy juice."
Induction

Day 6: Happy Juice

Owen, battling illness, finds joy in grandpa's video, family visits, and "happy juice."
Owen, battling illness, finds joy in grandpa's video, family visits, and "happy juice."
Owen's Parents
February 18, 2024
3 mins
Owen's leukemia treatment week shows his resilience, love's strength, and a mix of medical updates.
Induction

Day 7: It’s been a week

Owen's leukemia treatment week shows his resilience, love's strength, and a mix of medical updates.
Owen's leukemia treatment week shows his resilience, love's strength, and a mix of medical updates.
Owen's Parents
February 19, 2024
3 mins
Hospital stay reveals tough realities; Owen's treatment progresses, small victories celebrated amidst challenges.
Induction

Day 8: The Poop Victory

Hospital stay reveals tough realities; Owen's treatment progresses, small victories celebrated amidst challenges.
Hospital stay reveals tough realities; Owen's treatment progresses, small victories celebrated amidst challenges.
Owen's Parents
February 20, 2024
2 mins
Family warmth and Owen's progress shine, amidst hospital visits and playful moments.
Induction

Day 9: Visit from Papa & Nana

Family warmth and Owen's progress shine, amidst hospital visits and playful moments.
Family warmth and Owen's progress shine, amidst hospital visits and playful moments.
Owen's Parents
February 21, 2024
3 mins
Owen's day: laxative effects, 3 pants changes, 2 baths, hearty appetite, gifts, and hopeful discharge.
Induction

Day 10: Explosive

Owen's day: laxative effects, 3 pants changes, 2 baths, hearty appetite, gifts, and hopeful discharge.
Owen's day: laxative effects, 3 pants changes, 2 baths, hearty appetite, gifts, and hopeful discharge.
Owen's Parents
February 22, 2024
3 mins
Owen faced chemo bravely, with us providing love and support amid hardships, showing profound gratitude.
Induction

Day 11: Thank you!

Owen faced chemo bravely, with us providing love and support amid hardships, showing profound gratitude.
Owen faced chemo bravely, with us providing love and support amid hardships, showing profound gratitude.
Owen's Parents
February 23, 2024
4 mins
Owen's first day out of hospital: smiles, side effects, and acts of kindness.
Induction

Day 12: Home away from home

Owen's first day out of hospital: smiles, side effects, and acts of kindness.
Owen's first day out of hospital: smiles, side effects, and acts of kindness.
Owen's Parents
February 24, 2024
3 mins
Owen struggled with discomfort, anxiety, and medication; we showed unwavering support amidst challenges.
Induction

Day 13: Rough Day

Owen struggled with discomfort, anxiety, and medication; we showed unwavering support amidst challenges.
Owen struggled with discomfort, anxiety, and medication; we showed unwavering support amidst challenges.
Owen's Parents
February 25, 2024
2 mins
Cloudy day; Owen's first clinic visit post-discharge; family adjusts, finds small victories.
Induction

Day 14: Better Day

Cloudy day; Owen's first clinic visit post-discharge; family adjusts, finds small victories.
Cloudy day; Owen's first clinic visit post-discharge; family adjusts, finds small victories.
Owen's Parents
February 26, 2024
2 mins
Owen struggles with pain, we support him during a tough relocation day.
Induction

Day 15: Musical Hotels, Part 1

Owen struggles with pain, we support him during a tough relocation day.
Owen struggles with pain, we support him during a tough relocation day.
Owen's Parents
February 27, 2024
2 mins
Faced tough night at Ronald McDonald, chose Residence Inn for Owen's care.
Induction

Day 16: Musical Hotels, Part 2

Faced tough night at Ronald McDonald, chose Residence Inn for Owen's care.
Faced tough night at Ronald McDonald, chose Residence Inn for Owen's care.
Owen's Parents
February 28, 2024
2 mins
Owen's first chemo outpatient visit; early start, comfort in new hotel, and emotional strength.
Induction

Day 17: “I’m sorry I’m sick…”

Owen's first chemo outpatient visit; early start, comfort in new hotel, and emotional strength.
Owen's first chemo outpatient visit; early start, comfort in new hotel, and emotional strength.
Owen's Parents
February 29, 2024
2 mins
A day of calm in Owen's journey, marked by support, love, and resilience amidst treatment.
Induction

Day 18: Lazy Sunday on Friday

A day of calm in Owen's journey, marked by support, love, and resilience amidst treatment.
A day of calm in Owen's journey, marked by support, love, and resilience amidst treatment.
Owen's Parents
March 1, 2024
2 mins
Moments of normalcy, medical updates, and a spark of independence amid his leukemia battle.
Induction

Day 19: Spark of Returned Independence

Moments of normalcy, medical updates, and a spark of independence amid his leukemia battle.
Moments of normalcy, medical updates, and a spark of independence amid his leukemia battle.
Owen's Parents
March 2, 2024
3 mins
We share gratitude amidst Owen's treatment challenges and community support.
Induction

Day 20: Tired, Stressed, Thankful

We share gratitude amidst Owen's treatment challenges and community support.
We share gratitude amidst Owen's treatment challenges and community support.
Owen's Parents
March 3, 2024
2 mins
Casey, Dan, Sam, and fans donate $1,753 to Owen's fund, impacting our life!
Induction

Day 21: Thank you, Ground Control!

Casey, Dan, Sam, and fans donate $1,753 to Owen's fund, impacting our life!
Casey, Dan, Sam, and fans donate $1,753 to Owen's fund, impacting our life!
Owen's Parents
March 4, 2024
4 mins
Cloudy Portland day mirrors our cabin fever; support and hope for Owen's leukemia battle shines.
Induction

Day 22: Christmas in March

Cloudy Portland day mirrors our cabin fever; support and hope for Owen's leukemia battle shines.
Cloudy Portland day mirrors our cabin fever; support and hope for Owen's leukemia battle shines.
Owen's Parents
March 5, 2024
2 mins
We find hope and excitement in returning home after battling leukemia.
Induction

Day 23: Anticipation of Home

We find hope and excitement in returning home after battling leukemia.
We find hope and excitement in returning home after battling leukemia.
Owen's Parents
March 6, 2024
2 mins
We reflectson hope and resilience during son's chemotherapy journey as we finally return home!
Induction

Day 24: Home, at last!

We reflectson hope and resilience during son's chemotherapy journey as we finally return home!
We reflectson hope and resilience during son's chemotherapy journey as we finally return home!
Owen's Parents
March 7, 2024
3 mins
Emotional day with highs, lows, joy, and gratitude; support uplifts Owen and family.
Induction

Day 25: Blessings

Emotional day with highs, lows, joy, and gratitude; support uplifts Owen and family.
Emotional day with highs, lows, joy, and gratitude; support uplifts Owen and family.
Owen's Parents
March 8, 2024
3 mins
 Owen's transformation from a picky eater to insatiable due to treatment narrates our family's journey through hope and adaptation.
Induction

Day 26: Two Extremes

Owen's transformation from a picky eater to insatiable due to treatment narrates our family's journey through hope and adaptation.
 Owen's transformation from a picky eater to insatiable due to treatment narrates our family's journey through hope and adaptation.
Owen's Parents
March 9, 2024
3 min
Now home after weeks in Portland, we grapple with hope and weariness.
Induction

Day 27: Maelstrom of Emotions

Now home after weeks in Portland, we grapple with hope and weariness.
Now home after weeks in Portland, we grapple with hope and weariness.
Owen's Parents
March 10, 2024
3 mins
Nana's presence today was not just a help; it was a lifeline.
Induction

Day 28: Nana, Beacon of Love

Nana's presence today was not just a help; it was a lifeline.
Nana's presence today was not just a help; it was a lifeline.
Owen's Parents
March 11, 2024
3 mins
The specter of what could have been had we chose inaction haunts our quieter moments...
Induction

Day 29: He's Alive

The specter of what could have been had we chose inaction haunts our quieter moments...
The specter of what could have been had we chose inaction haunts our quieter moments...
Owen's Parents
March 12, 2024
3 mins
Here we are, navigating these treacherous waters together, holding hope as our compass.
Induction

Day 30: Patience, Resilience, Exhaustion...

Here we are, navigating these treacherous waters together, holding hope as our compass.
Here we are, navigating these treacherous waters together, holding hope as our compass.
Owen's Parents
March 13, 2024
3 mins
Each day since has been a journey filled with milestones, challenges, and victories. Today, we celebrate all three.
Induction

Day 31: It's been a month...

Each day since has been a journey filled with milestones, challenges, and victories. Today, we celebrate all three.
Each day since has been a journey filled with milestones, challenges, and victories. Today, we celebrate all three.
Owen's Parents
March 14, 2024
3 mins
Owen's second bone marrow and lumbar chemotherapy appointment finally is here.
Induction

Day 32: Accidental Nap

Owen's second bone marrow and lumbar chemotherapy appointment finally is here.
Owen's second bone marrow and lumbar chemotherapy appointment finally is here.
Owen's Parents
March 15, 2024
4 mins
Our sweet boy makes his way back to us through the fog of illness and medication
Induction

Day 33: Unsolicited Hugs & Kisses

Our sweet boy makes his way back to us through the fog of illness and medication
Our sweet boy makes his way back to us through the fog of illness and medication
Owen's Parents
March 16, 2024
3 mins
As one phase ends, a new one starts.
Consolidation

Day 34: Consolidation

As one phase ends, a new one starts.
As one phase ends, a new one starts.
Owen's Parents
March 17, 2024
4 mins
Owen reclaiming pieces of his normalcy with the tenacity of a knight in shining armor.
Consolidation

Day 35: A week free from medications

Owen reclaiming pieces of his normalcy with the tenacity of a knight in shining armor.
Owen reclaiming pieces of his normalcy with the tenacity of a knight in shining armor.
Owen's Parents
March 18, 2024
3 min
Physically and emotionally, Owen showed us the brightest side of his spirit today. And we got some great news!
Consolidation

Day 36: No detectable Leukemia cells

Physically and emotionally, Owen showed us the brightest side of his spirit today. And we got some great news!
Physically and emotionally, Owen showed us the brightest side of his spirit today. And we got some great news!
Owen's Parents
March 19, 2024
3.5 mins
We are grateful, beyond words, for the love that surrounds us, the strength it gives Owen, and the hope it instills in our hearts.
Consolidation

Day 37: Play, Love, Community

We are grateful, beyond words, for the love that surrounds us, the strength it gives Owen, and the hope it instills in our hearts.
We are grateful, beyond words, for the love that surrounds us, the strength it gives Owen, and the hope it instills in our hearts.
Owen's Parents
March 20, 2024
3 mins
We travel to Portland for Owen's Port Placement, and we explain why he requires more treatment despite remission.
Consolidation

Day 38: Eve of Port Placement

We travel to Portland for Owen's Port Placement, and we explain why he requires more treatment despite remission.
We travel to Portland for Owen's Port Placement, and we explain why he requires more treatment despite remission.
Owen's Parents
March 21, 2024
4.5 mins
Today, we were clinging to the hope for a seamless port placement surgery for Owen without a single hitch.
Consolidation

Day 39: Hope for Successful Port Surgery

Today, we were clinging to the hope for a seamless port placement surgery for Owen without a single hitch.
Today, we were clinging to the hope for a seamless port placement surgery for Owen without a single hitch.
Owen's Parents
March 22, 2024
8 mins
A day of vulnerability and resilience, painting the delicate process of physical and emotional healing for Owen.
Consolidation

Day 40: Young Cub Nursing Wounds

A day of vulnerability and resilience, painting the delicate process of physical and emotional healing for Owen.
A day of vulnerability and resilience, painting the delicate process of physical and emotional healing for Owen.
Owen's Parents
March 23, 2024
3 mins
The eve of another medical operation for our brave little warrior
Consolidation

Day 41: Sunday Normalcy

The eve of another medical operation for our brave little warrior
The eve of another medical operation for our brave little warrior
Owen's Parents
March 24, 2024
2 Mins
Another day that promised progress, a step closer to healing.
Consolidation

Day 42: Another Operation, New Medication

Another day that promised progress, a step closer to healing.
Another day that promised progress, a step closer to healing.
Owen's Parents
March 25, 2024
3 min
Amid Owen's brave Leukemia fight, a harrowing experience at Riverbend Hospital spotlights the critical need for competent, empathetic care in our journey.
Consolidation

Day 53: Incompetence at Riverbend

Amid Owen's brave Leukemia fight, a harrowing experience at Riverbend Hospital spotlights the critical need for competent, empathetic care in our journey.
Amid Owen's brave Leukemia fight, a harrowing experience at Riverbend Hospital spotlights the critical need for competent, empathetic care in our journey.
Owen's Parents
April 6, 2024
4 mins
Hard to imagine that it's already been 60 days! Watch what it looks like to have a great Port Placement!
Consolidation

Week 8: It's been 60 Days!

Hard to imagine that it's already been 60 days! Watch what it looks like to have a great Port Placement!
Hard to imagine that it's already been 60 days! Watch what it looks like to have a great Port Placement!
Owen's Parents
April 13, 2024
2 mins
Owen completes cancer treatment phase and enter a new one as we brace for next challenges on the horizon
Interim Maintenance

Week 10: New Phase of Treatment!

Owen completes cancer treatment phase and enter a new one as we brace for next challenges on the horizon
Owen completes cancer treatment phase and enter a new one as we brace for next challenges on the horizon
Owen's Parents
April 22, 2024
2 mins
Owen's birthday shines amidst treatment, as family and friends offer love and support during Interim Maintenance.
Interim Maintenance

Week 12: Owen Turns 4, Thanks to Doctors and Prayers!

Owen's birthday shines amidst treatment, as family and friends offer love and support during Interim Maintenance.
Owen's birthday shines amidst treatment, as family and friends offer love and support during Interim Maintenance.
Owen's Parents
May 10, 2024
2 mins

Get notified of future journal entries.

Get notified of our daily entries along with breakthroughs of Owen's progress during his treatment.

By clicking Sign Up you're confirming that you agree with our Terms and Conditions.
Thank you! You're in!
Oops! Something went wrong while submitting the form.
Owen all smiles in the hospital being treated for Leukemia
Help.

Fundraisers

You can help Owen's parents stay on top of additional expenses required for caring for Owen's.

A Papas Pizza Fundraiser event to support our family. The event is scheduled for Wednesday, March 20th
Papa's Pizza Fundraiser
New
March 20, 2024
1577 Coburg Road

A Papas Pizza Fundraiser event to support our family. The event is scheduled for Wednesday, March 20th

More info
Help support Owen's parents.

While his medical costs are covered, Owen's parents have restricted income due to being out of work to provide care.