Journal entry:
Day 17: “I’m sorry I’m sick…”
Owen's first chemo outpatient visit; early start, comfort in new hotel, and emotional strength.
Day 17's entry into our journey with Owen starts in the quiet morning hours at 6:30 am; our little warrior stirred from his rest earlier than usual, as today marked a significant milestone—Owen's first outpatient chemotherapy appointment. Despite the early rise, we found solace in the comfort of the new hotel, a stark contrast to the nights spent at the Ronald McDonald House. Refreshed from showers and a hearty breakfast, we prepared for the day ahead, embracing the small moments of normalcy amidst our new routine.
In a light-hearted moment before dawn, Owen, with his unyielding spirit, awoke at 3 am with Mom, his heart set on leftover breadsticks — proclaiming that pizza is what he'll be eating when he wakes in the morning. And true to his word, pizza for breakfast it was—a promise fulfilled.
By 8:30 am, we arrived at the OHSU Doernbecher Children's Hospital clinic, the first of many visits in our quest to reclaim Owen's health. The process began with routine checks—weight, height, and the essential blood work to monitor his vitals, all while Owen remained nestled in his wagon. This wagon, more than a mere tool for transport, symbolized a haven of comfort for him, a safe space holding back the nosey doctors. Today, however, was not without its trials. The administration of Owen's chemotherapy steroid, though quick, was a source of anxiety for Owen.
Yet, it was the changing of his PICC line dressing that tested Owen's patience. This seemingly innocuous procedure was a monumental challenge for Owen, but he courageously managed it without screaming or moving his arm, only tears.
By mid-morning, we returned to the sanctuary of our hotel, the significant challenges behind us. The afternoon unfolded with a sense of calm, a precious respite. Owen, weary from the morning's ordeal, found solace in sleep, as did Mom, while Dad seized the moment to attend to the demands of work. Dinner was a repeat of Owen's specific craving—pizza and breadsticks, a small indulgence sanctioned by his doctors, a nod to the peculiarities of his appetite during this phase of treatment.
Yet, it was Owen's heartfelt apology that marked the day's most poignant moment. "Guys, I'm sorry I'm sick," he uttered his words, a heavy burden borne from innocence. This confession reflected his inner turmoil and brought us to tears. In response, Dad's embrace was a gesture of comfort and reaffirming our unwavering support. Our assurances to Owen—that he was not to blame, that his illness was a challenge we faced together, and that our love for him was boundless—were our vow to him, a promise to stand by his side through every high and every low.
After such a meaningful conversation, we take a moment to look back on our journey so far. We have come halfway, facing various obstacles, celebrating victories, shedding tears, and sharing laughter. Owen's strength, courage, and unconditional love inspire and guide us through these challenging times. We move together as a family, strengthened by our enthusiasm and unwavering faith in Owen's future.
— Owens Parents
Owen's Treatment Calendar
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