Journal entry:
Day 27: Maelstrom of Emotions
Now home after weeks in Portland, we grapple with hope and weariness.
In the quiet of our home, the one we've longed to return to, the silence speaks louder than we ever remembered. We've crossed the threshold back into a semblance of our old life, yet the air feels different, heavier. It's been 27 days since our world tilted on its axis, 27 long days that we've spent clinging to hope like a lifeline. Today, under our own roof, the weariness hits differently. It's as if our very bones are steeped in fatigue that no amount of sleep can cure. We wander through the rooms like specters, half in this world, half in a nightmare we can't quite shake off. The shadow of Owen's battle with leukemia looms over us, a silent, uninvited guest in every room.
Even though Owen has made strides large enough for us to return home a week ahead of schedule, a tightrope of anxiety stretches beneath our feet. Every step forward is measured, every breath caught between hope and fear. The fear isn't just of the unknown; it's the terror of hope being snatched away when we start to believe in it again. It's as if we're constantly looking over our shoulders, wary of what might be lurking in the shadows, ready to upend our fragile peace.
Owen's bravery in the face of aggressive chemotherapy has been heroic. Yet, this first battle, while significant, is just one chapter in a more extended saga. The upcoming bone marrow test looms over us like a dark cloud. It's scheduled for next Friday—a day that holds the key to our immediate future. We oscillate between hope and dread, praying fervently that the test reveals no detectable trace of leukemia cells. Such a result would usher us into a phase of consolidation, a period marked by a regimen of less aggressive, daily oral chemotherapy. A phase where life could start to resemble something normal again, where Owen's risk of relapse dwindles to an afterthought.
But the sword of Damocles hangs by a thread. Should any leukemia cells be detected, we'll be thrust into an intensification phase, mirroring the harshness of the initial treatment. The very thought is a lead weight in our stomachs, a constant reminder of the fragility of our situation.
Amidst this maelstrom of emotions, we try to carve out pockets of normalcy. Today, we managed to do just that. We gathered around the breakfast table, a unit united by more than blood—a family fortified by shared trials and tribulations. We allowed ourselves to get lost in the simplicity of cartoons, a brief escape from the complexity of our reality. We tried to relax, to let the warmth of our home seep into our weary souls, even as the dust and disorder called out for our attention. Yet, even these moments are bittersweet, tinged with the awareness of the battle ahead.
So, we've decided to allow ourselves more rest and grace. Our home, our sanctuary, will have to wait a little longer for our care. We cling to each other for now, drawing strength from the love that binds us. We're learning to navigate this new normal, where every laugh is cherished, and every moment together is a gift. As we brace for the journey, we hold onto hope, fragile and precious. The journey is daunting and uncertain, but we walk it together, step by step.
Owen's Treatment Calendar
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