Journal entry:
Day 37: Play, Love, Community
We are grateful, beyond words, for the love that surrounds us, the strength it gives Owen, and the hope it instills in our hearts.
We've shared this journey closely with you, not just as an update but as a testament to the resilience of the human spirit, especially one as young and vibrant as Owen's.
The anticipation of today was palpable, not just within our household but within the hearts of our extended family and community. The Papa's Pizza Fundraiser, an event organized to support Owen's treatment and recovery, was not just a marker of the day but a beacon of hope and solidarity. The build-up to this event was filled with mixed emotions—excitement at the prospect of gathering with loved ones and the underlying reminder of why we were coming together. Owen, ever the resilient spirit, approached the day with a sense of normalcy and playfulness that has become a source of strength for all of us.
Like many recently, Owen's day began with simple joys and childhood pleasures. He busied himself with his Hot Wheels track. This favorite pastime has provided him with entertainment and a sense of control and normalcy amidst the chaos of treatment schedules and hospital visits. His mobility and playful demeanor, more pronounced today than in recent weeks, were a heartwarming precursor to the evening's event. His energy was infectious, reminding us of the power of youthful innocence and resilience.
The return of his appetite, evidenced humorously by the newfound longevity of a package of bacon in our household, and his selective eating were significant signs of improvement. These moments of normalcy, of childhood preferences reemerging, are treasures in our current reality, offering glimpses of the everyday life we are fighting to preserve and return to fully.
However, Owen's interaction with his grandmother today was the emotional highlight. The spontaneous hug he offered her when she made an unexpected visit to our home, a gesture of pure love and affection, was a poignant reminder of the emotional journey we've all been on. This was more than a hug for Nana and us; it was a milestone, a sign of Owen's returned spirit, and a moment of pure love.
As the evening approached, with the fundraiser, we were met with an overwhelming display of community support. The turnout at Papa's Pizza in the two short hours there was a testament to Owen's impact on the hearts of those around him. And it did not include some unseen and unspoken people who showed up throughout the day. Friends, family, and even faces unfamiliar to Owen gathered in a show of solidarity that was both heartwarming and awe-inspiring. Owen's reaction to the crowd, a mix of excitement and overwhelm, mirrors our feelings. The joy of seeing him engage with his cousin in the play area and their innocent attempts at playing games was a slice of normal childhood that we cherish deeply.
This event, while a fundraiser in name, was so much more in spirit. It was a gathering of hearts, a collective embrace of our family, and a powerful reminder of the good in the world. For every face in the crowd, known or unknown, there was a story of compassion, of taking a moment out of their lives to stand with Owen, with us, in this fight.
The gratitude we feel for this outpouring of support is immeasurable. It's a comfort and a strength, knowing we do not face this battle alone. The generosity and love shown tonight and throughout this journey bolster our spirits and fuel our fight.
As we look to tomorrow, with the imminent surgery for Owen's Port placement, we do so with hope and determination — especially with the knowledge that he's now technically in remission. The road ahead is still long — with many more months of semi-aggressive treatment to ensure it does not return. Still, with Owen's spirit and the incredible support of our community, we face it with unwavering resolve.
Tonight, as Owen rests, tired from a day filled with play, love, and community, we are reminded of the preciousness of these moments. We are grateful, beyond words, for the love that surrounds us, the strength it gives Owen, and the hope it instills in our hearts.
TOTAL RAISED: $2673.47!
Owen's Treatment Calendar
Help us provide Owen with the very best quality of life.
While insurance will cover some of our expenses, as we’ve learned with his Leukemia, it’s going to be a major financial burden to give Owen the best quality of life.
You can support by donating, subscribing, or sharing our story with a friend or relative who can.
Donate or Sponsor
Make a single donation, or opt for a reoccurring donation at any amount you set.
Shop for merch
We've personally designed t-shirts, mugs, and other merch to reward each donation you provide.